_elsicon2022-paper-is-it-just-for-a-screening-program-to-give-people-all-the-information-they-want.jpg "*ELSIcon2022 Paper: Is it just for a screening program to give people all the information they want? from decision support systems for healthcare Video Screenshot Preview")
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⏲ Duration: 13 min 40 sec
✓ Published: 14-Sep-2022
✓ Published: 14-Sep-2022
Description:
What normative role should people’s preferences should play in determining access to genomic information, particularly in relation to just and equitable design of reproductive genetic carrier screening (RGCS) programs? Many prefer to receive information about both the genetic variants they carry and those that their (potential future) offspring may carry too, if offered the opportunity. However, information about genetic variants that are of uncertain significance, or are not associated with s
What normative role should people’s preferences should play in determining access to genomic information, particularly in relation to just and equitable design of reproductive genetic carrier screening (RGCS) programs? Many prefer to receive information about both the genetic variants they carry and those that their (potential future) offspring may carry too, if offered the opportunity. However, information about genetic variants that are of uncertain significance, or are not associated with s
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